Leslie and David's Cancerland Adventures

Showing posts with label surgery. Show all posts
Showing posts with label surgery. Show all posts

Sunday, July 24, 2011

June 7 -- Woo hoo! Leslie's being sprung! On the hottest day of the year so far...98 with a heat index of 104.

We will retreat to the air conditioned bedroom and sip iced tea and eat Popsicles.

After recovery time from the transport, Ms. Hornig will be receiving visitors in her salon. Those able to ignore clutter are warmly invited.

June 6 -- I'm spelling David in his role as daily correspondent. (not really; you've already gotten his report)

Happy to say that I am feeling very much on the upswing today. Recovery got off to a good start, then took a left turn into the land of blood clots, poorly controlled high blood pressure, and accompanying shortness of breath and enervation. Today feels way better, and I'm finally to the point of anticipating with pleasure going home in the next day or two. And I'm finally eating!

David has been an absolute champ throughout this difficult time. He's quick to supply a cool washcloth when I need it -- and trust me when I say that going cold turkey on the estrogen is no picnic. He supports me on walks, takes care of all manner of small details, comes back to hospital late at night when I need a kiss and a hug, runs interference with the hospital staff, washes my hair, and even is mastering giving me shots of blood thinner!

He is absolutely holding to his wedding vows -- the part about in sickness as well as health -- and I couldn't be more grateful to and for him.

Reading your emails, talking to you on the phone, and visiting with those of you nearby is a great lift. Thanks for keeping me in your thoughts.

June 6 -- Sorry not to send an update last night. While most primary teachers know 16 ways to get out of participating in PE, Leslie apparently missed that professional development course and was found yesterday to have two pulmonary embolisms. Her blood pressure had been rising, and she was short of breath after doing far less than she'd done the day before, so they sent her down to CT.

We were quite a scene in the hallway outside the scan, waiting for transport back to the room. It was freezing cold, and both of us were wrapped in multiple blankets, looking like refugees in Siberia.

Last night, she felt miserable, so I came back in and slept in her room. Today, she is 1000% better - has an appetite, went for a good walk, even had a sponge bath and hair wash (amazing what that will do for attitude). For those thinking about an iPad, here's an unheralded function: you can use the front camera like a mirror, for brushing hair! What will they think of next?

Treatment for the PEs is upping the dose of blood thinner, so they want to keep Leslie one more night to see how she responds to that, and if her BP comes down to stay. Cross fingers for good numbers and going home tomorrow, though with a forecast of 90s and humid, maybe the air conditioned hospital is the place to be!

Leslie plans on writing directly to all of you this morning. Stand by.

June 4 -- Even Goldilocks only had to sleep in three beds. When I go in tomorrow morning, we'll see whether I find Leslie in the room where I left her tonight, or in another, one corridor over. Somewhere around midday today, Leslie started feeling that her heart was pounding, and in looking into this the doctors heard Leslie's long-standing PVC (premature ventricular contraction). It's been well explored and no one seems especially worried about it, but given everything else, the doctors wanted to keep an eye on it -- by transferring Leslie to a bed in the cardiac unit where they can do overnight cardiac monitoring.

This would be Leslie's fourth bed -- the first was tooooo hard. No, wait a minute. The first was a single room equipped for radiation therapy, and was needed for that purpose. The second was a double room that they'd promised would be blocked as a single for Leslie, but they needed the extra bed. The third has been perfect, and she likely would have been released from there had they not wanted to watch her pulse...and she may still be. When I left at 9:30 tonight, they had yet to find a cardiac bed for her. Chances are good that, in true hospital fashion, they'll wake Leslie in the middle of the night to move her.

In any case, Leslie is likely to be released tomorrow sometime. She has accomplished the key task required for release...and this is where fourth graders come in. To get out of the hospital, you must...fart. Do not pass gas, do not collect $200. To put this in terms Leslie would appreciate, she was until this afternoon like Sarah Palin -- she talked a good game about boosting domestic gas production, she just didn't actually accomplish the task. No longer, though.

Not much new today, otherwise. They are still tweaking Leslie's pain meds, but mostly she's comfortable except in two situations -- when she burps (fourth graders ride again!) and when I make her laugh. These both cause painful spasms. One of these stimuli can be easily controlled; now, if only there was a blocker for humor.

More wonderful visits today; much appreciated and will be even more important in the days to come cooped up at home. Leslie still tires easily, but she's good about saying when she's worn out.

More soon! Thanks for all the "karma rockets" headed our way.

June 3 -- Today was a combination of not much happening and lots happening. At the start of the day, Leslie was connected to an IV line, catheter and an epidural painkiller line. This afternoon, she is tube free...unconnected. This morning, Leslie was on clear liquids, now she no diet restrictions (though not a huge appetite). She's been for two good, long walks, the first with a nurse and the second just with Emily and me and a friend.

The switch to oral pain meds has her a little sleepy, but when she's up she's quite alert and upbeat. She's had really nice visits today, friends and colleagues, including one who brought a very thoughtful selection of science and gardening magazines.

The best odds are on going home Sunday. Tomorrow is an outside possibility, though only if Leslie is eager to go home, which she isn't. Monday is possible if recovery slows at all.

Four people today have said how great Leslie looks -- two doctors and two laypeople. I tend to agree, but I think I'm a non-objective observer. It's good to hear from others.

That's the news from Camp Leslie, where all the women are strong, good looking and above average.

June 2 -- Not much new to report this morning. Dr. Yamada doesn't expect to have the pathology report until next Wednesday at earliest, a long time to wait but as my friend Jeff (Chief of Surgery here and former bandmate in "Supreme Pontiff") says, Leslie's job right now is to heal from the surgery; all else will come in time.

Leslie slept pretty well and is looking forward to having her nasal tube out this morning. This will make her more comfortable and significantly easier to kiss. Pain level is pretty low and her goal for today is to walk a bit. I hope she'll be ready for visitors this afternoon!

May 31 -- It was a very long surgery for Leslie, but she came through it well. She was still in post-op recovery when we came home for the night, but her doctor reported that she'd done very well, and wouldn't need to spend the night in the ICU.

They found the anticipated uterine cancer, but also found what the doctor called "intra-abdominal spread" that may indicate another cancer. The pathology report will take a day or two to process, so next steps won't be clear for a little while, though an aggressive chemo course is anticipated. The doctor was confident that she was able to remove all visible growths, very important to prognosis and recovery.

I'll be in early tomorrow morning. I hope in time for rounds, and the doctor expects Leslie to be pretty alert. At that point, since you all know Leslie well, you can anticipate that she'll begin asking the questions and directing strategy!

More as we know it, and thanks again for your messages and thoughts.